My Aching Heart...
...more like my squeezing heart.
Late last week, I had 4 random incidences of short (a minute or less), but very painful, squeezings of my heart muscle. At least I think it was my heart muscle; just slightly left of my breast-bone & it felt deep. Friday night/early Saturday morning, it woke me up from a sound sleep. And it scared me a bunch.
I've had lots of chest pain over my lifetime, since a little girl. Pneumonia a few times, bronchitis several times, chest pain from anxiety, etc., but I've never experienced the 'squeeze' sensation.
I'm not a reactive person, so after I thought about it for several hours (I shouldn't wait, I know), decided I'd go to the E.R. and get checked-out.
My Mother's side of the family, including my siblings, is rife with heart disease; so far I've been lucky, but at age 54, decided to err to the side of caution.
However, with PSP, I've been experiencing, muscle spasms and/or tightness and/or pain where I didn't think it was possible. That was also on my mind, and my preference over a heart problem, frankly.
I had 2 E.R. docs working on me. I explained PSP & how it can affect muscles, tendons, ligaments, etc. But I quickly realized after my1st few sentences I had lost them; they had no idea what I was talking about - what a surprise, eh?#!
This was within the 1st 5 minutes or so. One went so far as to tell me she didn't think "your little neurological problem" had anything to do with the reason I was there.
'Little problem'?? If I had the energy, I would've reacted in a big way. No doubt I'm not the only one with PSP who's experienced physicians not knowing what PSP is. But why do they have to get so defensive? Ego? Just my opinion, but it seems to me some docs just don't like it when you know something they don't, and can talk eloquently about it, but geeeez.
My EKG, BP, and bloodwork were all normal, or as they put it "almost normal". The only thing that wasn't was my oxygen level; stayed stuck at 94 for several hours in spite of 3 rounds of nitro and nasal oxygen.
They kept me overnight to do a blood test every 6 hours to determine if one of those 'squeezes' was a heart attack. Those tests were normal too, thankfully
Today I go back to the hospital for a heart echo-cardiogram/treadmill test; because of my family history, have to follow this thru. If it's normal, I see my Neurologist on the 30th and will get his opinion on all of this.
Just curious...anyone else with PSP or a care-taker of someone with PSP ever experience muscle spasms in the chest area, not related to a heart problem?