BEING PSP PREPARED

jimandsharynp
Posted by jimandsharynp
12 Mar 2013

We often think of being prepared as having our legal affairs in place. Here's something to also think about. I made a list of people and phone numbers who could step in for emergency situations with my PSP wife. It's a list of neighbors who are willing short term help and also church people for short term help. I'm the only caregiver at the moment so if something happens to me my PSP wife would need immediate help. Also on the list are personal care people I've found who don't come through an agency but are Certified Registered Nursing Assistants (they cost less and are as good). These people can come in nights and on a "more hours" basis. Also on the list are care facilities I've researched locally and found acceptable should my wife need to go into one and I'm not around. Your relatives and family won't be prepared for an emergency unless you prepare them. I also have forwarded this list to all those on the list so they know their helpful roll. It is also important that you document the capabilities of your PSP patient. What can they do safely? What can't they do safely? Can they speak and be understood? Can they go to the potty on their own? etc. etc.

Jimbo

Leave a comment    See 9 comments

9 comments

kay1
12 Mar 2013
what a wonderful idea, hopefully you will remain strong and not need the help of other carers, but you have done so well with your forward thinking.

x

Reply to this

JudyJ
12 Mar 2013
Jimbo:

Your wife is very lucky to have you; you may think you're just doing what any spouse would do, but I don't believe that is always true.

You always give sound advice. This post has given me more to consider & is timely as I'm meeting with my attorney this morning to start on a detailed health care directive.

Keep posting your advice; it's very helpful.

Judy

Reply to this

Kathy
12 Mar 2013
Hi Jimbo,

What a good idea! At least you now know things are covered should the worst happen. Hopefully you won't ever need to put those plans into action. ;-)
We have also have a "message in a bottle" which was provided by our District Nurses. Inside a small plastic bottle there is an information sheet which you complete detailing GP telephone no, emergency contact no's, medications and all sorts of other details. They tell you to put it in your fridge. Then you display a little sticker by the front door so that if emergency services have to be called they know to look in the fridge for all the information they need. I suppose it's less important if you are always there, but if you were taken ill whilst out and about and they had to break in to get some assistance to your wife, at least all the relevant information would be to hand.

www.westminster.gov.uk/serv...

It seems to be a fairly nationwide scheme.

love Kathy x

Reply to this

jimandsharynp
12 Mar 2013
Excellent information. Good idea about the fridge also.

Jimbo

Reply to this

daughterno1
12 Mar 2013
One more thing-it pays to have the diagnosis and a brief description in hand as mum got taken into hospital twice when I was on my way to her with notes the ambulance people made without checking this and even though I got there and explained , mum was not treated according to her actual illness but what the ambulance crew had decided. Ie dementia or parkinsons disease. This made me quite distressed as mum had never shown any signs of dementia, just slow responses! But what was really annoying was that the hospital used this estimation throughout mums stay! GRRR! Luckily I went in every day and chased things up but it made more work!

Reply to this

Momto5
12 Mar 2013
My parents made out their wills, got medical and financial power of attorneys and burial insurance. They have moved into our home and I help mom take care of dad.

Reply to this

jimandsharynp
12 Mar 2013
Momto5: Good for you! I'm glad you have stepped up to help take the load a bit off your dad. Sounds like you have a wonderful family.

Jimbo

Reply to this

NannaB
12 Mar 2013
Brilliant idea Jimbo.
NannaB

Reply to this

jillannf6
18 Mar 2013
HI JIM
YE S A GREAT IDEA
LOL JIll
:-)

Reply to this

Leave a comment

You must be signed-in to leave an answer. Sign in.

Not a HealthUnlocked member? Join today

Guidelines

Content on this site does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Views expressed are those of individuals and not of PSP Association
Learn more (Opens in new window)

Spread the word!

Invite your friends and followers to find their community on HealthUnlocked!

Recent top bloggers

  1. vero11 vero11 (4 posts)
  2. JudyJ JudyJ (4 posts)
  3. tisha1953 tisha1953 (3 posts)
  4. Kathy Kathy (3 posts)
  5. maeve maeve (2 posts)
  6. coleen coleen (2 posts)
  7. jimandsharynp jimandsharynp (2 posts)

* posts in the last 30 days