PSP Association | HealthUnlocked

Hello has anyone had CHC funding removed because they see the needs are managed ?We are due for a review and there was a veiled threat last time. It's such a...

Our hearts are broken as our dad passed away on April 15th. We wanted to summarise his journey and symptoms to hopefully help others and to also raise...

two years ago I was diagnosed with PSP. I had had over 200 falls in 3 years then dizzyness that won't stop. Now I walk with a rollator which I have used for 2...

My beautiful Ben passed away on Monday and is now free of this terrible disease. My heartfelt thanks to everyone who contributes to this site. My partner died...

My beautiful sister in law has after a long journey been diagnosed with PSP initially a Parkinson diagnosis a year ago after many falls, but in February a...

Hi Everyone, My mum had her meal this evening and looks like the food went the wrong way, she has been coughing, she feels like there is cough around her...

Hi there. My dad was diagnosed last year and my sister and I are just trying to help him navigate this awful disease as much as we can. He is still quite...

Hi only just joined this group and was hoping for a little information/ advise. My mum has psp and is now choking on everything she tries to eat and drink. My...

A bit of fun for a good cause. You have to watch the video - sorry! https://youtu.be/sTjJA8bBIY8 We have Tim Brown (Daddyt on this site) to thank – he...

Is anyone watching This Morning with the Salt Path couple?!

Hello everyone. It's not often I post here, however I read lots of the posts and take comfort in this community. My Mum was diagnosed with PSP in 2018. She now...

Mum was only diagnosed with PSP last Octobershe is falling alot more now and ,her speech has really got very bad over the past month and I just wondered if...

My mom, who had PsP, is now a star in the sky. The last stage was brutal. her husband and kids were there with her for this journey and we try and console...

Hello this is my first post. my brother lives with me and he has always had complex needs. Diagnosed with CBD in 2021 but symptoms since 2018. Off his feet...

My wife was diagnosed with PSP some 3 years ago and is now suffering regular pain and spasms in her legs, she is on Co-Caroldopa 4 times a day and our GP as...

This is the first time I've posted. I live in California and heard about HealthUnlocked so thought I'd give it a try. My husband of 53 years has been...

After 4 years of pushing him, pushing for tests and watching a 6 foot plus ex Royal Navy football/rugby player fall, loose the use of his right hand and leg,...

Hi everyone, I just wanted to give an updat on the London Marathon. As many of you know, I posted in here that I was doing it for the PSPA, and quite a few of...

My mum has double vision ,one on top of each other not side to side ,she has a real problem with sunlight Has anyone heard of glasses you can get ? Concerned...

Please could I ask if anyone has experience of surviving on liquid meals only. My 64 year old husband has PSP and is in advanced stages. He does not want to...

Hi, This is my first post. My mum was diagnosed in March 2021 with PSP. I just wanted to share this link to see if anyone else had read this....

my mum was diagnosed with PSP 3.5 years ago, and it has progressed so so quickly, i wonder where the time has went, it is unfortunate now that she has been...

As posted previously about my mum's eye sight ,but a new one appeared today .She has flashing lights in her eyes ,is this a common complaint with psp ??

Not only has mum got psp ,been to the hospital today only be told by the heart specialist that she has severe heart failure as well .I know she is 86 years of...

Hi everyone, my Dad is in the later stages of PSP, his speech has pretty much gone apart from the very occasional word, he’s now in a wheelchair and is...

hi This is my first post, my husband 79 was diagnosed with PSP 18 months ago. My biggest frustration and upset is his apathy and lack of communication. We can...

I meant to say I don’t know if this is because I answered No to the question can your husband wash, dress and feed himself. In 2022 when we took the policy out...

Hi. I’m wondering if anyone else has experienced this. My mum who has CBS finds that when she laughs now she blacks out and feels faint. She is finding that...

Hi Karol has had a dry mouth since having peg fitted and nil by mouth for fluids . However he has started drooling a lot this week and I wouldn’t say clenching...

Wife recently diagnosed with CBD. Lost use of 1 arm, other one is less under her control. Balance is variable. Looking to travel to Spain. Any...